Muscular Dystrophy Resource Centre (MDRC)
Supported by PTC Therapeutics
Admission open for June 2017
We are proud to announce the launch of a Centre for comprehensive care & management of Duchene Muscular Dystrophy patients and specialist training to their parents/care givers.
Services to DMD children: Genetic diagnosis, physiotherapy, Meditation, Yoga, Art & Craft training, Counselling, morale building etc.
Services to Parents: Training on weight management, diet management, respiratory management, cardiac management, basic physical therapy, dos & don’ts, information support, guidance, referrals, research updates, psycho-social and genetic counselling. A parent will also have several opportunities to interact with other parents and learn from their best practices and mistakes.
Parents who underwent the training program at MDRC will be eligible to join the ‘Whatsapp’ group. This would help exchange of exercise videos, photos of their respective children and seek expert advice from MDFINDIA.
- Facts about DMD
- Dos & Don’ts
- Weight management
- Dietary recommendations
- Respiratory management
- Cardiac management
- Barefoot Physiotherapy training
Click to view the sample videos of a mother helping her son do exercises. She was trained at MDRC. https://youtu.be/0Gy0Trvn1hg https://youtu.be/kTcIbrPGczo
This is a residential program. Food and accommodation are available at the centre.
Mobile: 099 94 34 01 21
MAKE USE OF IT! Don’t miss it!